What's new with Darcy: Recent Comments

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Rosalyn Fast — Mon, 06 Feb 2012 06:15:15 GMT

Just some other thoughts.....

Caregivers are backstage working to help the star performers – the people who have sustained a traumatic brain injury – shine. The caregiver role isn’t usually one expects or trains for but rather a role that one unwittingly steps into right after an accident happens often on a journey to where or for how long?

Each person’s journey / story is different. We have experienced some similar and uniquely different things as we deal with the family member who has a brain injury.

Each person’s story will depend on which family member has sustained a brain injury and from that point on the other family member(s) jockey for new positions or new roles in the family.

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Annie Ricketts — Fri, 03 Feb 2012 15:38:46 GMT

It will be Saturday 30th June (and other nearby days for the exceptions) ..
http://www.mylatentself.co.uk/2012/01/the-brain-injury-global-picnic/

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Janie Smith — Tue, 31 Jan 2012 15:28:15 GMT

Hi Annie,

Thank you for the assist with my book and blog ...I appreciate it.

The Global Picnic is quite an amazing project. My plate is overflowing right now, so I will not be able to organize a function of this magnitude. I wish you the best on it and will post information about it in my social media.

Thank you for having a great site with awesome information. And putting on this global picnic what a unique idea.

I know you helping a lot of people with your work...helping each other move forward.

Thank you again,
Janie Smith

Comment on Routines Can Be Bad for You

Darcy Keith — Mon, 30 Jan 2012 01:32:02 GMT

Thanks for your post, Michael, and thank you for your service! I appreciate your willingness to help us survivors, and I hope that there will be some who take you up on your offer, especially veterans. Keep up the good work!

Comment on Routines Can Be Bad for You

Michael A. Boccio — Sun, 29 Jan 2012 23:07:35 GMT

I had my TBI back on 6/26/1979 and have been progressively getting better. I am a Veteran(100% DAV) and coming up on 5 years married to another TBI victim. I do whatever I can to help in any situation.Any questions can be addressed to Michael at boccio317@aol.com and I will do my best to answer, any and all questions.
Thank You,
Michael A. Boccio

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Annie Ricketts — Sun, 29 Jan 2012 22:57:12 GMT

Hi Dave,

I seems that we are sat in the same boat! I am emailing you as you asked... Thank you so much for your interest.

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Dave Olson — Sat, 28 Jan 2012 23:40:24 GMT

Annie, have you established a date for this picnic? Can you email me some additional information at info@phoenix-fund.org ?

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Dave Olson — Sat, 28 Jan 2012 23:11:52 GMT

Thanks to all of you for sharing on this string - it all sounds so familiar! My son too suffered a TBI in 2006 at age 18, awoke from his coma, survived 8 surgeries over the course of 8 months, was also dependent on a ventilator, feeding tube, etc. but was discharged to us at Christmas 2006.

While he is still hemi-plegic, mostly non-verbal, and totally dependent on us for his ADL's he (and we) have worked very hard for every inch of improvement. Today he is responsive, and luckily is very driven and positive. It's encouraging to hear about continued progress even after 20 years. We were told after one year that he had plateaued and that he could not understand a word that was said to him..it was all in the tone and inflection of our voices. Which couldn't be further from the truth. He was (and is) 'in there' and almost 6 years out he makes baby steps (forward) every day.

Rhonda, Kerri, Melissa...my only advice (for what it's worth) is to never give up!! It's gruelling and exhausting to point of being debilitating sometimes but it's worth it. As you know all too well, besides working multiple jobs to make ends meet, arranging for home renovations, obtaining equipment, fighting for therapies/help/support/benefits is a full time job all in itself. But, at least in my experience, it does (and hopefully will continue to) get better. It has to, right?

Darcy, thank you for this topic and your encouragement. Mary, your advice is something I haven't quite figured out yet...but I know it's imperative and hopefully I can put it into practice. Annie, I have requested to join your FB group and will go to your website next!

I would also like to invite any of you to visit our website and post on our FB page "TBI Phoenix-Fund". Our mission is to try and raise awareness for all of those parents who don't have a clue about the dangers of concussion/TBI - we certainly had no idea before we were living it every day!!

Be Well, Dave.

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Annie Ricketts — Fri, 27 Jan 2012 19:14:25 GMT

Hi Janie!
Your book is here: -http://www.mylatentself.co.uk/getting-help/books/
Your blog is here: - http://www.mylatentself.co.uk/getting-help/links/

Did I mention the Global Picnic that I am organising to raise awareness of the main BI issues? More information here: - http://www.mylatentself.co.uk/2012/01/the-brain-injury-global-picnic/ and here :- TBI Global Picnic

I hope that you may be able to help us or pass this notice out...
Many thanks for everything,
Annie

Comment on 5 Things Survivors of Brain Injury Should Know about Caregivers

Janie Smith — Thu, 26 Jan 2012 18:48:41 GMT

Hi Annie,

Good to hear from you and know that you are walking on your own path of success after your brain injury. Congratulations! I know this journey is beyond difficult and challenges you daily.

My book summary is on my website at http://www.hopebeyondtrauma.com">http://www.hopebeyondtrauma.com. On the menu will state "book." I have a blog with not only my thoughts, also my daughter's Tanya and my associate John Hatten, both brain injury survivors. That's under the "blog" tab. I have no problem of you taking any of these articles and posting them on your site. I am more than happy to help!

You have a really beautiful website with great information. It takes all of us reaching out to make this world a better place. Thank you for doing your part!

If you have any specific questions or issues you would like me to address I will help in any way I can.

Thank you so much for your comments and looking forward to connecting with you again.

Janie Smith
Founder, Author, Speaker, Trauma Coach
janie@hopebeyondtrauma.com
http://www.hopebeyondtrauma.com">http://www.hopebeyondtrauma.com